About wounds with lymphedema

Several common beliefs about lymphedema wounds cause trouble. One is that a leaking leg should be left uncovered to dry out. In practice, uncontrolled drainage damages the skin around it, and the treating clinician will usually choose a dressing that manages the moisture. Another is that swelling is simply part of aging or weight and nothing can be done. Swelling has causes, and many of them can be managed.

People also assume that a tighter wrap works better, or that old stockings from a drawer will do. Compression that is wrong for the limb can injure it. And some think the work ends when the wound closes. The swelling remains, and so does the need for daily skin care.

What an assessment covers

A first assessment usually starts with the story of the swelling. The treating clinician asks when it began, whether it affects one limb or both, and whether it goes down overnight. A history of cancer treatment, leg surgery, injuries, blood clots or repeated skin infections matters, and so does the list of current medicines.

This history points to the cause, or more often the mix of causes, and that shapes the care plan. Swelling driven mostly by the lymphatic system is handled differently from swelling driven by the heart, the kidneys or the veins. The clinician may want records or test results from other offices, and Gateway gathers those ahead of the visit when it can.

Arranging this care in North County

Many people in North County have lived in the same house for decades and have managed swollen legs on their own for nearly as long, often with worn stockings and a routine that worked until the skin opened. Older homes add their own difficulties: a tub to step over when legs need washing, a bathroom up the stairs, a favorite chair with no way to raise the feet. A treating clinician visiting at home can see these and suggest workable changes. Gateway coordinates the visit and any garments or supplies ordered.

Much of North County was built as subdivisions of brick ranch homes and bungalows, and those one-story houses suit home visits well. The region also has apartment complexes, senior apartment buildings, assisted living and a number of skilled nursing and rehabilitation centers. Gateway arranges partner clinician visits across all of them, from a house in Florissant to a nursing facility in Bridgeton. For a home visit, we ask where the patient is most comfortable being seen. For a facility, we ask which days work on the unit. The treating clinician handles the clinical side.

Care at home

Supplies run out quickly when a lymphedema wound is draining. Absorbent dressings, padding and wrap materials may be changed several times a week, and going without them for even a day or two can set the limb back. Gateway coordinates supply orders with the treating clinician’s orders and follows up with the supplier on delivery to your home.

Tell us when you are getting low, well before the last box is opened. It also helps to mention practical problems, such as fluid soaking through to bedding or furniture, or dressings that will not stay in place overnight. The clinician can often change the dressing or the plan to deal with them.

For residents of nursing and senior living communities

In a skilled nursing facility, a lymphedema plan succeeds or fails on consistency. A wrap put on firmly by the day shift and loosely by the evening shift does not control swelling, and gaps of a day or two let the limb refill. The treating clinician writes orders that are specific about the dressing, the compression and how often each is changed, and reviews them with the nurses who will carry them out.

Gateway coordinates the visit schedule with the facility and sends the orders and visit notes to the nursing team. Staff questions that come up between visits go back to the clinician.

What to report and when to call 911

Skin infection is the complication to watch most closely with lymphedema, because it can spread through a swollen limb quickly. Contact the treating clinician promptly if you notice:

  • Redness that is new or spreading, or red streaks running up the limb
  • Skin that feels hot or newly tender
  • Fever, chills or body aches
  • Drainage that turns cloudy, thick or foul smelling
  • Pain that is clearly worse than usual

Do not wait for the next scheduled visit to mention these. Call 911 if a person with these signs becomes confused, faint, very drowsy or short of breath.

How primary care fits in

Because lymphedema lasts longer than any single wound, someone needs to hold the long view. A primary care clinician can track how often skin infections return, check the feet and toenails for the fungal problems that let bacteria in, and serve as the point of contact for the other specialists you see.

Gateway arranges wound care and primary care together for this reason. When the wound visits wind down, there is already a clinician who knows the history, the garments in use and what an early flare looks like for you. Questions such as who reorders garments, and how often the limb should be rechecked, have a place to go.

Primary care at home in North County →

How to get started in North County

You may already have a surgeon, a wound clinic or a home health nurse and still want help with wound care with lymphedema closer to home in North County. That is a fine reason to call 314-325-0126. Tell us who is treating the wound now and what is not working, whether that is the travel, the gaps between appointments or unclear instructions. Gateway does not replace your current clinicians. We can arrange for a partner clinician to see the wound where you live and, with your permission, share notes with the offices already involved so the plans agree.

Christian Hospital, near Interstate 270, and SSM Health DePaul Hospital in Bridgeton are the two hospitals people in North County use most. Gateway is not affiliated with either one. The first days at home after discharge are when dressing questions and supply gaps tend to show up, so it helps to set up follow-up early. Families can call 314-325-0126 before the patient leaves the hospital. Discharge planners can fax referrals to 314-786-7966 with the summary and wound orders. Gateway then confirms which partner clinician can see the patient at the North County address.

  • County: St. Louis County, Missouri
  • ZIP codes: 63031, 63033, 63034, 63042, 63135, 63136, 63137, 63138, 63134
  • Nearby hospitals: Christian Hospital in North County; SSM Health DePaul Hospital in Bridgeton (not affiliated with Gateway)
  • Nearby communities: Florissant, Hazelwood, Ferguson, Bridgeton, North St. Louis
  • Care settings: Private homes, skilled nursing, assisted living, memory care and rehabilitation

Other conditions and nearby communities

Read the full guide to wounds with lymphedema, or see everything Gateway arranges on the mobile wound care in North County page.

Common questions

Will Medicare or my health plan pay for lymphedema wound care in North County?

It depends. You can ask us about Medicare, Medicare Advantage, Medicaid and commercial plans. Whether a provider participates, and what your benefits are, depends on the treating provider, your plan and the care the clinician orders. Visits, dressings, compression garments and pumps are often handled under different rules. We go over these questions with you before care starts.

Should I rest with my leg raised or try to keep moving?

Usually both have a place. Raising the limb while resting lets gravity help fluid drain, and walking or moving the ankles works the muscles that push lymph along. Long hours sitting still with the feet on the floor tend to make swelling worse. The right balance depends on your heart, your steadiness on your feet and your wound, so ask the treating clinician what is safe for you.

Can a wound care clinician come to a home in North County for a lymphedema wound?

Gateway arranges home visits with partner clinicians across Greater St. Louis and the Metro East, and availability in North County is confirmed by address and care setting. Call 314-325-0126 to ask. It helps to have a list of your medicines, the names of the clinicians you see and any wraps or garments you have tried. The treating clinician decides what care is needed after seeing the limb.

My mother in North County does not drive. Can care come to her, or does she need a ride?

Most of what Gateway arranges happens where the patient lives, so your mother would not need a ride for a home visit. If the treating clinician recommends a test or an outpatient appointment somewhere else, Gateway can help with transportation arrangements. Tell us about her situation when you call, including whether she uses a wheelchair or walker and who is usually with her.

General information to help you talk with your own clinician. It is not medical advice, and the treating clinician makes every clinical decision. For a medical emergency, call 911.