What to know about wounds with lymphedema
Lymphedema is long-term swelling that builds when the lymphatic system cannot carry fluid out of an arm or leg as fast as it collects. The lymphatic system is a network of thin vessels and nodes that returns fluid to the bloodstream and helps the body fight infection. When it falls behind, fluid that is rich in protein settles in the tissue under the skin.
A lymphedema wound is any open area on a limb swollen this way. It may be a shallow raw patch, a blister that has burst, a split at the bottom of a skin fold or a deeper ulcer. Most are on the lower legs, ankles and feet. What they share is the setting: skin that is stretched, damp and slow to repair itself.
How the care plan is built
Compression is the main tool for reducing lymphedema, but it is not right for every limb on every day. Before ordering it, the treating clinician checks blood flow to the foot or hand, sometimes with a simple circulation test, because squeezing a limb with poor arterial supply can do harm. Heart and kidney conditions are reviewed, since moving fluid out of the legs places extra load on the heart. Loss of feeling in the feet also matters. A person who cannot feel a wrap digging in cannot report it.
With that information the clinician decides whether to use compression, what kind, and how firm. The decision is revisited as the limb changes.
Local context: Florissant
Many people in Florissant have lived in the same house for decades and have managed swollen legs on their own for nearly as long, often with worn stockings and a routine that worked until the skin opened. Older homes add their own difficulties: a tub to step over when legs need washing, a bathroom up the stairs, a favorite chair with no way to raise the feet. A treating clinician visiting at home can see these and suggest workable changes. Gateway coordinates the visit and any garments or supplies ordered.
Single-story ranch houses are the typical Florissant home, which helps patients who cannot manage stairs. The city also has garden apartments, condominiums, senior apartment communities, assisted living, and skilled nursing and rehabilitation centers. Gateway arranges partner clinician visits in every one of these settings. A request can come from a homeowner, a relative or a facility’s nursing office. We then match the visit to the setting: a time of day that suits a family caregiver at home, or a time that works with medication passes and therapy in a facility.
When care happens at home
Supplies run out quickly when a lymphedema wound is draining. Absorbent dressings, padding and wrap materials may be changed several times a week, and going without them for even a day or two can set the limb back. Gateway coordinates supply orders with the treating clinician’s orders and follows up with the supplier on delivery to your home.
Tell us when you are getting low, well before the last box is opened. It also helps to mention practical problems, such as fluid soaking through to bedding or furniture, or dressings that will not stay in place overnight. The clinician can often change the dressing or the plan to deal with them.
For residents of nursing and senior living communities
Rehabilitation stays are hard on swollen legs. Long sessions in a wheelchair with the feet down let fluid pool, and wraps can loosen or slide during therapy. The treating clinician works with physical and occupational therapists on timing and positioning, such as when wraps are checked, how leg rests are used and how much ankle movement and walking can be built into the day.
Discharge needs planning too. Before the resident goes home, someone has to know who will apply compression, where supplies will come from and who follows the wound. Gateway can arrange for visits to continue at home, with availability confirmed by location.
Changes to report
Skin infection is the complication to watch most closely with lymphedema, because it can spread through a swollen limb quickly. Contact the treating clinician promptly if you notice:
- Redness that is new or spreading, or red streaks running up the limb
- Skin that feels hot or newly tender
- Fever, chills or body aches
- Drainage that turns cloudy, thick or foul smelling
- Pain that is clearly worse than usual
Do not wait for the next scheduled visit to mention these. Call 911 if a person with these signs becomes confused, faint, very drowsy or short of breath.
Primary care and overall health
Lymph flow in the legs gets much of its push from the calf and foot muscles squeezing with each step, so anything that limits walking tends to worsen swelling. Primary care can look at what is holding a person back, whether that is joint pain, breathlessness, weakness or fear of falling, and whether therapy would help.
General health affects the wound as well. Healing draws on protein and calories, high blood sugar slows repair and raises infection risk, and extra body weight adds pressure on lymph vessels in the groin and legs. These are long-term concerns that a primary care clinician follows alongside the wound visits.
Getting care arranged in Florissant
For a resident of a nursing home, assisted living or memory care community in Florissant, a request for wound care with lymphedema can come from the family, the resident or the facility’s nurses. Call 314-325-0126 and give us the facility name, the unit or room and the best nurse contact. Gateway speaks with the facility about its process for outside clinicians, confirms availability and coordinates a visit time that fits the resident’s day. After the visit, the treating clinician’s orders are given to facility nursing, and the family contact on file gets an update if the resident has agreed to that.
Florissant residents usually go to Christian Hospital in North County, east along Interstate 270, or to SSM Health DePaul Hospital in Bridgeton to the southwest. Gateway is independent of both. For discharge planners, the process is short: fax the referral, wound orders and face sheet, and note whether the patient is going home or to a facility. For families, call and tell us the hospital and the going-home date. Gateway requests the records, checks availability in 63031, 63033 or 63034, and arranges follow-up with a treating clinician.
- County: St. Louis County, Missouri
- ZIP codes: 63031, 63033, 63034
- Nearby hospitals: Christian Hospital in North County; SSM Health DePaul Hospital in Bridgeton (not affiliated with Gateway)
- Nearby communities: Hazelwood, Ferguson, North County, Bridgeton
- Care settings: Private homes, skilled nursing, assisted living, memory care and rehabilitation
Other conditions and nearby communities
Read the full guide to wounds with lymphedema, or see everything Gateway arranges on the mobile wound care in Florissant page.
- Diabetic foot ulcers
- Venous leg ulcers
- Pressure injuries and bed sores
- Arterial and mixed wounds
- Non-healing wounds
- Post-surgical wounds
- Reopened (dehisced) surgical wounds
- Surgical site infections
- Skin tears and traumatic wounds
- Skin graft aftercare
- Wound VAC (NPWT) follow-up
- Wound care with lymphedema in Hazelwood
- Wound care with lymphedema in Ferguson
- Wound care with lymphedema in North County
Common questions
Can Gateway arrange lymphedema wound care in a nursing home or assisted living community in Florissant?
Yes, we arrange visits in skilled nursing, assisted living, memory care and rehabilitation settings, subject to availability for that location. A facility nurse, social worker or attending physician can refer, and so can a family member. The treating clinician coordinates with facility staff on dressing changes and compression, and Gateway handles scheduling and paperwork between the facility and the clinician.
Could a compression pump help my lymphedema wound?
A pneumatic compression pump is a sleeve that inflates and deflates in sequence to move fluid out of a limb. Some people with lymphedema use one at home as part of a larger plan. It is not suitable for everyone, and concerns such as heart conditions, blood clots or active infection have to be considered first. The treating clinician decides. If one is ordered, Gateway coordinates the documentation and the equipment order.
My arm is swollen after breast cancer treatment and the skin has opened. Can Gateway help?
You can ask us about any lymphedema wound, including one on an arm or hand. Arm lymphedema after lymph node surgery or radiation carries the same infection risk as leg lymphedema, and a new opening in the skin should be reported promptly. Let your oncology team know as well. Gateway can arrange an assessment with a partner clinician and share the findings with the clinicians who managed your cancer care.
My parents have lived in the same Florissant ranch house for decades and do not want to move. Can care come to them?
Yes. Helping people stay in their own home is what in-home care is for. A partner clinician can visit for wound care, primary care follow-up or both, and can see both parents if each needs care. Tell us about each person separately when you call. The treating clinician will say if a need goes beyond what can be managed at home.
General information to help you talk with your own clinician. It is not medical advice, and the treating clinician makes every clinical decision. For a medical emergency, call 911.