About wounds with lymphedema

Lymphedema is long-term swelling that builds when the lymphatic system cannot carry fluid out of an arm or leg as fast as it collects. The lymphatic system is a network of thin vessels and nodes that returns fluid to the bloodstream and helps the body fight infection. When it falls behind, fluid that is rich in protein settles in the tissue under the skin.

A lymphedema wound is any open area on a limb swollen this way. It may be a shallow raw patch, a blister that has burst, a split at the bottom of a skin fold or a deeper ulcer. Most are on the lower legs, ankles and feet. What they share is the setting: skin that is stretched, damp and slow to repair itself.

How the care plan is built

A first assessment usually starts with the story of the swelling. The treating clinician asks when it began, whether it affects one limb or both, and whether it goes down overnight. A history of cancer treatment, leg surgery, injuries, blood clots or repeated skin infections matters, and so does the list of current medicines.

This history points to the cause, or more often the mix of causes, and that shapes the care plan. Swelling driven mostly by the lymphatic system is handled differently from swelling driven by the heart, the kidneys or the veins. The clinician may want records or test results from other offices, and Gateway gathers those ahead of the visit when it can.

Arranging this care in Collinsville

For people in Collinsville, lymphedema care often spans two states. Cancer treatment or vascular care may have happened at a St. Louis hospital, while primary care, home health and the health plan are based in Illinois. Records sit on both sides of the river. Gateway gathers them and confirms first which partner clinician can see you in Illinois. Illinois Medicaid and Missouri plans follow different rules, and benefits for compression garments, wraps and dressings vary, so coverage questions are raised before visits begin.

Homes in Collinsville range from older frame houses and brick bungalows near Main Street to ranch homes, newer subdivisions and apartment complexes closer to the interstates. Senior apartments, assisted living and skilled nursing care are part of the city too. Gateway arranges visits in each of these settings with partner clinicians. In a private home, we work out timing with the patient or a family member. In a facility, we coordinate with the nursing staff so the treating clinician has the chart, the current orders and a good time to see the resident.

When care happens at home

Supplies run out quickly when a lymphedema wound is draining. Absorbent dressings, padding and wrap materials may be changed several times a week, and going without them for even a day or two can set the limb back. Gateway coordinates supply orders with the treating clinician’s orders and follows up with the supplier on delivery to your home.

Tell us when you are getting low, well before the last box is opened. It also helps to mention practical problems, such as fluid soaking through to bedding or furniture, or dressings that will not stay in place overnight. The clinician can often change the dressing or the plan to deal with them.

In a facility

A resident with lymphedema usually has other conditions that the attending physician is managing, and several of them influence swelling. The treating wound clinician and the attending physician need the same information: what the wound looks like, what compression is in place, and whether fluid, weight or medicines have changed.

Gateway handles the paperwork side of that exchange. Visit findings and recommended orders go to the attending physician and the director of nursing, and relevant labs or notes from the facility come back to the wound clinician. Each clinician keeps authority over their own decisions, and the facility keeps one clear record.

Signs to tell the clinician about

Small changes in the skin of a limb with lymphedema are worth reporting early, while they are easier to deal with. Let the treating clinician know about:

  • A wound that is getting larger or deeper
  • A clear increase in leaking, or dressings that soak through faster than before
  • New blisters, raw patches or cracks, especially in skin folds
  • Skin around the wound that turns white, soggy or sore
  • Itching, scaling or splits between the toes
  • A new or stronger odor

Call 911 for heavy bleeding that does not stop with firm pressure, or if the person becomes confused or hard to wake.

How primary care fits in

Medicines are part of the swelling picture. Some commonly prescribed drugs, including certain blood pressure, diabetes, pain and hormone medicines, can cause the legs to hold fluid. Water pills reduce some kinds of swelling and do little for others, and they can affect the kidneys and blood pressure along the way.

Sorting this out is a job for the prescriber. Do not stop or change a medicine on your own because of swelling. A primary care visit that includes a full medication review gives the prescriber and the wound clinician a shared, current list, and Gateway coordinates the records so both are working from it.

Primary care at home in Collinsville →

Arranging wound care with lymphedema in Collinsville

Setting up wound care with lymphedema for someone in Collinsville usually goes in this order:

  1. You call 314-325-0126 or send the request care form, which asks only for a name and phone number.
  2. Gateway talks with you about the wound, the address and the insurance.
  3. We confirm availability for that location and gather records for the treating clinician.
  4. The clinician visits, assesses the wound and writes the orders.
  5. We follow up on supplies, the next visit and communication with your other clinicians.

You do not need a confirmed diagnosis to start.

Three hospitals are within reach of Collinsville. Anderson Hospital in Maryville is just north on Route 159, HSHS St. Elizabeth’s Hospital in O’Fallon, Illinois is a short drive to the southeast, and Gateway Regional Medical Center in Granite City lies west across the river bottoms. Gateway Wound Care is not affiliated with any of them. When a discharge is planned, a family member or the hospital’s discharge planner can contact us with the patient’s details. We gather the discharge paperwork and orders, confirm where the patient is going, and arrange follow-up with a partner clinician.

  • County: Madison County, Illinois
  • ZIP codes: 62234
  • Nearby hospitals: Anderson Hospital in Maryville; HSHS St. Elizabeth's Hospital in O'Fallon, Illinois; Gateway Regional Medical Center in Granite City (not affiliated with Gateway)
  • Nearby communities: Glen Carbon, Fairview Heights, Edwardsville, Granite City, Belleville, Illinois
  • Care settings: Private homes, skilled nursing, assisted living, memory care and rehabilitation

Related care in Collinsville

Read the full guide to wounds with lymphedema, or see everything Gateway arranges on the mobile wound care in Collinsville page.

Common questions

Can Gateway arrange lymphedema wound care in a nursing home or assisted living community in Collinsville?

Yes, we arrange visits in skilled nursing, assisted living, memory care and rehabilitation settings, subject to availability for that location. A facility nurse, social worker or attending physician can refer, and so can a family member. The treating clinician coordinates with facility staff on dressing changes and compression, and Gateway handles scheduling and paperwork between the facility and the clinician.

What does a lymphedema therapist do, and would I still need wound care?

A lymphedema therapist is a physical or occupational therapist with added training in reducing lymphatic swelling through specialized massage, bandaging, exercise and garment fitting. A therapist does not replace the clinician who manages an open wound. The two often work on the same limb at different stages. The treating clinician decides whether and when a therapy referral makes sense, and Gateway can coordinate the referral paperwork.

Should I rest with my leg raised or try to keep moving?

Usually both have a place. Raising the limb while resting lets gravity help fluid drain, and walking or moving the ankles works the muscles that push lymph along. Long hours sitting still with the feet on the floor tend to make swelling worse. The right balance depends on your heart, your steadiness on your feet and your wound, so ask the treating clinician what is safe for you.

Can Gateway arrange a visit at my daughter’s house in Collinsville while I recover there?

Yes. Care is arranged where you are staying, so give us your daughter’s address and a phone number that will be answered there. Let us know roughly how long you expect to stay and where you will go afterward. If you move back home, we update the location, confirm availability for that address and make sure the treating clinician’s records and orders follow you.

General information to help you talk with your own clinician. It is not medical advice, and the treating clinician makes every clinical decision. For a medical emergency, call 911.